But I wasn't dead, and though it took me awhile, gradually I learned how to cope with having Crohn's. And by late 2011, after having no flare-ups for almost a year, I decided I was in remission. It took me awhile to realize it, but when I did, it hit me like a revelation, and I was ready to celebrate by finally emerging from my hermitage. I wanted to tell everyone, so I got on my computer to type up a Facebook post.

And then the phone rang. It was my gastroenterologist, calling with results from my latest blood test: My liver enzymes were skyrocketing. So much for celebrating. Instead, I spent the next several months undergoing a series of tests and procedures, and I was put on the liver transplant list this past April.

It took awhile, but eventually I stopped freaking out about my situation. I finally ended my streak of seclusion by attending a party in Lake Worth. And soon after that, my former bandmate Steve McKean hosted a "welcome back" party for me — and the Boloby band shook off our stage rust and performed an impromptu set, as did Pots 'N' Pans. The 20 minutes or so I spent playing music that night was without a doubt the best I've felt since this whole thing began. It felt right, like this is what I am supposed to do. I would very much like to do it again, despite this transplant looming over my head like a bile-filled rain cloud.

Billy Boloby
Billy Boloby

My liver specialist told me that after my transplant, I'll feel a lot better and will have a lot more energy. Perhaps 2013 will see my return to the stage. In the meantime, I created a website, Boloby.Wordpress.com, where I have posted most of my music, writings, and random oddities such as a Weekly World News article about the Boloby band having met at a camp for deformed children. Onstage or off, I have to stay creative. Crohn's and PSC can kick my ass all they want, but as long as I have my creative health, I'm good.

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My Voice Nation Help

Hey Billy.  I hope you ultimately win your battles with Crohn's.  Your shows were some of the most memorable, entertaining and inspiring I've ever seen.  You would be doing the world a great disservice by leaving the stage behind.  Much respect.

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